Wednesday, September 4, 2013

What I know

I just got a comment ( I publish them all)   referring to the fact that I said I know about something that helps a lot,  so why don't I tell people what it is.  The reason is that people have to forget about Morgellons  and stop hiding your condition by hiding indoors.   Get together and make a noise.  Don't leave everything to us bloggers.   I have sworn that I will not tell,   until the CDC stops playing games with our lives.

1 comment:

Anonymous said...

"I'm going to withhold ________ until I get what I want."

Fill in the blank. It's a childish tactic which isn't going to work and allows people to suffer needlessly (if what you know actually does work).

You can still advocate for full disclosure, treatment options, acceptance by the medical community - all of it. Holding back information until the CDC recognizes collembola as parasitic to humans is not effective - and as long as sufferers are scrambling for a cure, we will not be effective.

Just tell us what helps so we can stop wasting all this time and energy on seeking a cure.